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Beautiful story that made me cry a lot of emotion! This battling mother and baby warrior showed that courageously facing difficulties does not have to be big, just having the will to live! Beautiful story by reader Tatiana and her son Daniel.
“Hi girls, my name is Tatiana, I am 23 years old, I am married and I have 2 children. The first is 2 years old and 9 months old is a beautiful boy, since he turned 1 my husband and I wanted to have another child, preferably a girl. On July 3, 2013 I found out I was pregnant again, it was a surprise because we hadn’t planned our dream yet, but she was very loved from the beginning. It was a peaceful pregnancy, without any problems and I really wanted a normal birth. I did Pilates all my pregnancy, I walked a lot, going up and down the stairs of my house every day, all to help fit the baby and dilate. My prenatal care was at SUS, every month I was in the range of 4 hrs waiting to visit. At 17 weeks I did a private ultrasound to find out the sex, because SUS only at 24 weeks, and anxiety was killing me lol.
And by the time the doctor passed the device, the discovery IS A BOY , then I cried because I really wanted a girl, 5 more SECONDS later I had a smile from ear to ear lol, my world is totally blue. My husband wanted a little girl too, and when I told him it was another boy, he joked “do I not know how to make a girl?” Lol. My son loved the idea of having a little brother to play with with him.
After 40 weeks I went to my prenatal consultation, the doctor asked for a cardiotoccus exam and saw that everything was fine with the baby and she already had 2 dilation fingers and asked me to come back in 2 days. I was super happy thinking that I would dilate more in those 2 days, I always kept an eye on the moons (what a silly mother) and at 40 weeks and 2 days I went back to the hospital and did the exam again. The baby was fine and the dilation was still the same, but at that moment an angel touched the doctor, and she asked me for an ultrasound to see the liquid. The thing is to have 8lt of liquid in the bag, I had 3lt, almost nothing else, the doctor admitted me for an emergency cesarean.
It was 02/27/14 5:35 pm my newest gift arrived in the world , beautiful even taking possession to take a photo, measuring 49cm and 3,275gr. When the pediatrician took him to see if everything was okay, heard a breath in his little heart, they took him to be observed (all children are born with a murmur and after a few minutes he closes) and he stayed at UTINEO, more I did not know that. When I went to the room at 7:00 pm, almost nobody heard from my little one, and I started to be in despair, unable to do anything lying on that stretcher without being able to move. My mother running down the hospital corridors asking for news, my husband too, and no one gave them information. At 10:30 pm my husband was called to the ICU to see our son, he came back and told me that he was fine, that was a relief even more so it didn’t leave me calm, I needed to see him. At 2 am when I was able to get up to take a shower I asked to see my son, I went with great difficulty to the ICU and saw that my baby was really well, but he couldn’t go with me to the room and the nurse couldn’t tell me what he he had.
The other day at 16hrs in the afternoon the doctor called me to talk and said that my son’s breath had not closed, and that the cardiologist said that he would have to be under observation for 1 week to see if he would close with the medication they had they would give, if it doesn’t close it would be only with surgery. My ground opened up, I lost all the direction of my life, I cried compulsively day and night, and every day I returned to that hospital to see my little one in that place. After 1 week came another news, my son would have to operate, MORRI at that moment I DIED … He had a stenosis in the pummon valve. Stenosis is when the valve that carries oxygen to the heart does not open to pass the oxygen and so the heart lacked oxygen, causing it to turn purple, black, every time it cried and even without crying with difficulty breathing.
I wanted to save my son in every way, by that time he was already using HALLO a type of oxygen to be able to breathe, my fear was that he would be intubated and a few days later he had to be intubated because he couldn’t take any more help without breathing . My battle began to get a place for my son’s surgery as soon as possible to end all that suffering. I called all the politicians I could call, spoke on TV Vanguarda, local TV in my city, and nothing resolved . Until my uncle a doctor in Campinas, he got in touch with the cardiologist at PUC in Campinas and got a place for my son. Thank goodness, the nightmare was just beginning again.
That was Saturday morning, a place was guaranteed for him until Sunday at 20hrs and during that 1 day I almost had a heart attack, as the Municipality of São José dos Campos did not have a UTINEO ambulance to transport my son to Campinas for surgery, they got an ambulance from Taubaté with a doctor with no experience and a nurse with less experience than the doctor to transport my son. The ambulance arrived in São José at 7:00 pm (remembering that I had to be in the fields until 8:00 pm) I was already in tremendous despair but as my God never leaves me, we went anyway…. we arrived in campinas at 23hrs and his place was still there. He was operated on 03/16 with 2 weeks of life, thank god the surgery was a success and my son was doing very well, we went back to São José and he stayed another 30 days in the ICU recovering from the surgery.
With all this, he didn’t take the breast, he lost a lot of gaining weight properly. You are out of his weight, but in tremendous health !! The cardiologist who is following him is impressed with the perfection of the surgery. Today he has a normal life, he doesn’t need any care , just grow up, put on weight, play and be happy. He no longer takes any medicine and no longer has any health problems, thank God. I can only thank God for the life of my warrior, and for having supported me in all my moments. This is Daniel’s story, which is only 3 months old, with a lot of war and battle. Girls never give up the battle, no matter how difficult it is, always give it to God that he takes care of everything. ”
See also: What is Craniostenosis and What is the Treatment?
My name is Dr. Alexis Hart I am 38 years old, I am the mother of 3 beautiful children! Different ages, different phases 16 years, 12 years and 7 years. In love with motherhood since always, I found it difficult to make my dreams come true, and also some more after I was already a mother.
Since I imagined myself as a mother, in my thoughts everything seemed to be much easier and simpler than it really was, I expected to get pregnant as soon as I wished, but it wasn’t that simple. The first pregnancy was smooth, but my daughter’s birth was very troubled. Joana was born in 2002 with a weight of 2930kg and 45cm, from a very peaceful cesarean delivery but she had already been born with congenital pneumonia due to a broken bag not treated with antibiotics even before delivery.
